All of Us Consortium of CTSI Community Engagement Programs

FOA OTA-20-009: All of Us Consortium of CTSI Community Engagement Programs SCOPE OF WORK The Community and Collaboration Core (UK C&C Core) of the University of Kentucky Center for Clinical and Translational Science will participate as a member of a national collaboration to respond to the call from the All of Us Research Program to increase efforts to gather data from diverse populations. Funded by the National Institutes of Health (NIH), the goal of the All of Us Research Program is to build a database of over one million people from across the U.S. from whom extensive data will be collected and who will be followed over time to better understand how biological, lifestyle, and environmental factors interact to affect health and health outcomes. The UK C&C Core has a long history of working with diverse populations in Kentucky. Among these are rural, Hispanic, and Black populations who are burdened with among the highest rates of cardiovascular disease, diabetes, respiratory disease, and cancer morbidity and mortality in the nation. For this project, we will build on our strong connections to increase recruitment in these communities that are currently underrepresented in the All of Us database. Working with other members of the PACER (Partners for the Advancement of Community Engaged Research) network, we will help to recruit and retain 31,400 participants who reflect the rich diversity of the United States. As one of nine sites, the UK C&C Core will recruit and retain approximately 500 participants from diverse communities annually throughout the 5-year period of the study. Efforts will include engaging and building relationships and trust with communities historically underrepresented in biomedical research. For this purpose, study personnel, who are community health workers (CHWs), will provide outreach and education to diverse Kentucky communities. They will also provide information regarding the All of Us Research Program. For any community member interested in learning more, CHWs will consent them and will then conduct a preliminary assessment including measurement of blood pressure. They will also assess participant’s health needs and provide information about health resources based on identified needs. After this, the CHWs will provide information about the All of Us program and, for anyone who is interested in enrolling, the CHW will offer to assist the person to connect to the enrollment site. The CHWs will assist with following participants who enroll in the All of Us Program over time, sending them regular text message or email reminders about follow up times with the All of Us program. They will also be available to answer participant questions should any arise. Through the UK C&C engagement as a member of the PACER collaboration, we will significantly contribute to the understanding of multiple factors that contribute to health and health outcomes of diverse U.S. populations through engaging, enrolling, and retaining representative samples in the All of Us Research Program.