Comprehensive Hemophilia Diagnostic and Treatment Center-MCHB 2013-14

The expanding challenge of the network of hemophilia treatment centers is to apply the comprehensive preventive health model as widely as possible. Challenges for the bleeding disorder network remain, in the imperative to discover those who remain underserved and to apply lessons learned in hemophilia to higher incidence problems, including families of women and girls with bleeding disorders who may benefit from the comprehensive approach. Methodology: The network of comprehensive hemophilia treatment centers that serve Region IV-North (Kentucky, North Carolina, South Carolina, and Tennessee) will cooperate to deliver preventive and family-based care consistent with the highest standard to all areas of the population of our states. The cornerstone of care is the annual or semi-annual comprehensive clinic visit, at which attention to bleeding symptoms is paid, in addition to wide-ranging aspects of health and healthy behavior of the family. The objectives of this project include an increased effort to recruit to care the underserved, those living below poverty and those who are uninsured, those who are minorities and the women and girls who bleed. Individual hemophilia treatment centers also commit to the colletion and sharing of demongraphic information on the composition, care and complications of the bleeding disorders population served at the center.