Grants and Contracts Details
The three objectives for this cross-sectional study are to: 1. Compare health-related quality of life among children and adolescents diagnosed with Spinal Muscular Atrophy previously published data from a population of healthy children. 2. Evaluate congruency between the parent's perception and that of the child/adolescent. 3. Establish the feasibility of using a self-report quality of life measure in a pediatric population diagnosed with Spinal Muscular Atrophy.
|Effective start/end date
|5/1/06 → 5/31/08
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