FORCE (Fontan Outcomes Registry Using CMR Examinations) Registry Within the Department of Cardiology

Patients with functional single ventricle (FSV) congenital heart disease comprise a complex and heterogeneous population that is usually palliated with the Fontan procedure. There is significant mortality and morbidity as these patients enter adulthood that accelerates as these patients age. Many patients die. Cardiac transplantation is an option for some patients, but many are not suitable candidates or die before an organ becomes available. While some risk factors to predict these adverse outcomes have been identified, a comprehensive risk stratification model has not been developed. The goal of this study is to understand how CMR parameters are associated with clinical outcomes in this vulnerable population.