Grants and Contracts Details
Description
The Office for Children with Special Health Care Needs (OCSHN) is statutorily mandated by KRS 200.460 to provide services to children with disabilities through contractual agreement. In addition, OCSHN is responsible for creating inclusive community-based systems of services for Children and Youth with Special Health Care Needs (CYSHCN).
OCHSN in collaboration with the University of Kentucky Research Foundation, an 501(c)(3) non-profit organization will develop a support group for Spanish-Speaking families for Children and Youth with Special Health Care Needs (CYSHCN). The Spanish-speaking support group will help Hispanic/Latina families facing language and cultural barriers increase their knowledge and access to services that will greatly enhance children’s health and well-being, and reduce caregiver stress that can negatively affect children with special health care needs.
University of Kentucky Research Foundation shall:
1. Establish community partnerships and collaborations.
a. Conduct a minimum of ten (10) outreach meetings annually with the Family Health Center, schools, community centers, pediatric practices that serve Hispanic/Latina families and community based organizations such as churches, special interest groups, etc.
b. Conduct a minimum of ten (10) outreach meetings per year with the Latino community within the Lexington area to identify Spanish-speaking families with CYSCHN. Identify leaders among Hispanic/Latina families of CYSHCN to be trained on the Family-to-Family program.
2. Conduct needs assessment survey to determine topic areas for therapeutic support groups. Conduct an initial assessment to explore. The topics for support groups are the following but not limited to:
a. Hispanic/Latina families’ knowledge on local resources
b. Barriers to access culturally and linguistic sensitive services
c. Attitudes and knowledge regarding advocacy
3. Convene and facilitate therapeutic support groups for Hispanic/Latina families of CYSHCN with the goal of helping those families to become advocates for their children through education and mutual support. Support groups will be conducted one (1) time per month (excluding the month of July). If the group is unable to meet due to weather conditions, OCSHN shall be contact. Support group topics may include but are not limited to, one (1) of the following topics each session:
a. Leadership
b. Self-Advocacy
c. Nutrition
d. Fitness
e. Medication Management
f. Social Services
g. Understanding Medical Needs
h. Self-Management/Condition Management
i. Talking with Health Care Providers
j. Knowing your rights
k. Life Skills/Independent Living
l. Sports and Recreation
m. Continuing Education Beyond High School
n. Accessing Adult Services
o. Self-Development
p. Effective Parenting
4. Arrange guest speakers/interpreters for each support group meetings.
5. Cover facility fees.
6. Advertise and publicize support group meetings.
7. Provide childcare for each support group meetings.
8. Administer a group evaluation after each support group meeting to identify areas for improvement.
Achievement of project outcomes will be measured by self-reporting of support group participants
through questionnaires.
9. Conduct annual feedback survey from the Spanish-speaking families about the program.
Status | Finished |
---|---|
Effective start/end date | 7/1/20 → 6/30/21 |
Funding
- KY Cabinet for Health and Family Services: $27,600.00
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