National Cancer Prevention and Control Program

Beginning with cases diagnosed in the first full year of data collection forward, the contractor shall maintain a cancer information reporting system for the specified coverage area. The Contractor shall identify and register all cancers diagnosed in residents of the coverage area. This willrequire casefinding in all hospitals where cancer is diagnosed and treated. In addition, casefinding should be carried out in all pathology labs which provide cancer diagnostic services, all nursing homes identified as sources of cases through death clearance or pathology review, all tree-standing medical facilities where cancer is diagnosed and treated, and the offices of physicians where significant numbers of otherwise unreported cases can expected to be found, e.g. dermatopathologists. It is recognized that the contractor may not have legal access to some medical facilities other than hospitals, in which case the contractor should seek the cooperation of these other facilities for casefinding purposes as well as pursue obtaining the necessa ry statutory authority to gain access to sucii institutions for cancer registration purposes. Another source to be utilized in ascertaining reportable cancers is death certificates of residents dying in or outside the coverage area where cancer is listed on the death certificate. The contractor must also establish procedures as necessary to ascertain reportable cancers diagnosed in residents outside the coverage area. The registry must have procedures in place to periodically identify new medical facilities in the coverage area in which cancer is diagnosed and treated. The contractor must also periodically determine whether there are previously unidentified facilities outside of the coverage area where residents go for diagnosis and treatment of cancer. Casefinding procedures should be designed such that it is possible for the registry to provide complete counts of new cases for a calendar year within 20 months of the end of that calendar year. All cases with a behavior code of '2' or '3' in the International Classification of Diseases for Oncology, Second Edition (ICD-0-2) are reportable neoplasms. The following are exclusions: 8000-8004 8010-8045 8050-8082 8090-8110 Neoplasms, malignant, NOS of the skin (C44.0-C44.9) Epithelial carcinomas of the skin (C44.0-C44.9) Papillary and squamous cell carcinomas of the skin (C44.0-C44.9) Basal cell carcinomas of any site except genital sites Note 1. The above lesions are reportable for vagina, clitoris, vulva, prepuce, penis and scrotum (sites C52.9, C51.0-C51.9, C60.0, C60.9, C63.2). Note 2. If a '0' or '1' behavior code term In ICD-O-2 is verified as In situ, '2', or malignant, '3', by a pathologist, these cases are reportable.