Optimizing Treatment for Human Papillomavirus-Associated Oropharyngeal Cancer in Older Adults

Statement of Work The Kentucky Cancer Registry (KCR) will assist researchers at the Medical University of South Carolina (MUSC) with recruitment of cancer cases to participate in their research. Patient recruitment will occur in year 1of the project. KCR will contact cancer cases meeting eligibility requirements to seek permission to release their contact information to the researchers at MUSC. KCR will prepare mailings for physicians and cancer cases. The cancer case’s physician of record will first be contacted via mail to ask if there is any reason that the case should not be contacted (i.e. dementia, in a nursing home, etc.). If after two weeks the physician does not inform KCR of a reason not to contact the case, KCR will contact the case via mail asking permission to release their contact information. The cases are provided with a response card to mail back with their response. If a response from the cases is not received after two weeks, KCR will contact the cases via phone to seek verbal permission to release their contact information. KCR will also be responsible for tracking accrual rates as well as preparing reports related to patient recruitment for the researchers. The KCR will also conduct data linkages in year 2 of the project. All cases that have consented to participate in the research will be linked to the registry to obtain case level data about their cancer diagnosis. The researchers at MUSC will provide identifiers to the honest broker at KCR who will use those identifiers to link the participants to the case level data in the registry. KCR will use Match*Pro software which was created specifically to conduct probabilistic record linkages for cancer registries.