PILOT: From Adoption to Impact: Identifying Adoption Barriers and Usability Gaps in Cancer InFocus

Principal Investigator: Burus, Todd American Institutional Research Grant Cancer Society – January 2019 2. PROJECT TITLE: From Adoption to Impact: Identifying Adoption Barriers and Usability Gaps in Cancer InFocus 3. ABSTRACT: Background: The Markey Cancer Center (MCC) Community Impact Office developed Cancer InFocus (CIF), a data gathering and visualization platform, to help cancer centers assemble, maintain, and translate cancer surveillance data into usable products for research and community-engaged cancer control. CIF offers >175 up-to-date indicators and four interactive dashboards; code for institution-specific installations is distributed via no-cost licensing. CIF has been adopted by 57 institutions—including over half of NCI-Designated Cancer Centers—and enables adopters to obtain and disseminate more data with less time and effort than prior approaches. Our long-term goal for CIF is a sustainable, low-cost, high-value platform that accelerates datadriven cancer research and outreach by reducing the expertise and time needed to produce cancer surveillance dashboards. CIF supports (1) individual end-users who use dashboards to guide research prioritization and public health planning and (2) institutional adopters who implement and maintain individual CIF installations. Scaling CIF’s impact depends on improving both end-user usability and institutional adoption readiness, especially for central cancer registries (CCRs), the primary stewards of population-based cancer incidence data. Objective: This one-year project will generate stakeholder-informed feedback to optimize CIF for wider adoption and effective use and provide preliminary data for a larger NIH U24 grant application. We hypothesize that identifiable, modifiable user- and institutional-level barriers constrain adoption and use, and that barrierinformed enhancements will improve task-based usability and adoption readiness. Specific Aims: • Aim 1: Identify usability and application strengths and weaknesses among individual CIF end-users and develop a list of actionable items to improve user comprehension and efficiency • Aim 2: Identify adoption determinants and implementation requirements for CIF among US CCRs and develop a list of actionable items to improve adoption readiness Study Design: In Aim 1, we will conduct a task-based usability evaluation with 20 participants from MCC and Kentucky cancer-focused community organizations who have no prior experience with CIF. Participants will complete standardized tasks (e.g., locate measures, compare geographies, export data); we will measure taskbased performance; assess usability with the System Usability Scale; perform comprehension checks; and collect structured qualitative feedback to prioritize improvements. In Aim 2, we will disseminate a REDCap survey to all US CCRs (N=55) and conduct semi-structured interviews with a purposive subsample (N=20) to clarify adoption requirements and support needs (e.g., staffing capacity, IT/security requirements, hosting/maintenance burden, and preferred support models). Findings will be mapped to the NASSS (Nonadoption, Abandonment, Scale-up, Spread, and Sustainability) implementation framework and used to produce a ranked barrier profile and actionable requirements list. Synthesizing across aims, we will deliver a near-term, prioritized CIF enhancement package to support an extramural U24 submission to sustain and scale CIF. Cancer Relevance: By improving end-user comprehension and efficiency and institutional adoption readiness for a scalable cancer surveillance and planning resource, this project and subsequent grant will expand the capacity of cancer centers, CCRs, and community partners to translate surveillance data into timely, datadriven research and outreach. These improvements will strengthen targeting of prevention, screening, and control efforts in high-burden communities and support reductions in population cancer burden and disparities over time.