Grants and Contracts Details
Description
Abstract
Health-related quality of life, and the provision of evidence-based psychosocial services across all phases of
care, have become increasingly important in the treatment of the entire family unit impacted by pediatric
cancer. The Standards for Psychosocial Care of Children with Cancer and Their Families (the Standards),
specifically prioritize psychosocial support for parents and other primary caregivers (PCCC) as an essential
component of care.1 PCCC have many strengths but are also at increased risk for adverse psychological
symptoms, including acute distress, posttraumatic stress symptoms (PTSS), anxiety, depression, and impaired
family functioning.2 The Surviving Cancer Competently Intervention Program (SCCIP) is an evidence-
based psychosocial treatment model that can modify these symptoms and benefit the entire family. We
propose a three-step approach to integrating SCCIP into pediatric cancer care in Kentucky.
SCCIP is a family-systems and cognitive-behavioral psychological intervention proven to reduce posttraumatic
stress and improve mental health outcomes and coping in pediatric cancer.3 It is a hallmark program of the
Center for Pediatric Traumatic Stress (CPTS; www.healthcaretoolbox.org), a center in the National Child
Traumatic Stress Network devoted to traumatic stress responses in pediatric healthcare. CPTS is anchored in
Kentucky, Delaware, and Pennsylvania. Over three decades, new iterations of the SCCIP psychosocial
treatment model (see Approach) have been tested including a day-long family intervention, a three-session
individual family intervention, a digital adaptation (in English and Spanish), and a family camp modification.
Each version has been tested across settings and over 150 providers nationwide have been trained in the
SCCIP psychosocial treatment model.4,5
Given its strong multi-disciplined psychosocial team, recognition for Standards implementation, patient
advisory panel, and existent programming for PCCC, Norton Children’s Hospital is uniquely positioned to utilize
its existent resources to adapt, test, and implement an innovative iteration of SCCIP (SCCIP-KY) for high-risk
groups in Kentucky. This study represents the KPCRTF vision to augment and elevate collaborative
efforts for fostered innovation thru the partnership of state and national psychosocial leaders at
Norton Children’s Hospital, UK Healthcare and the SCCIP Team at the CPTS.
Status | Active |
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Effective start/end date | 7/1/24 → 6/30/25 |
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