Surviving Cancer Competently Intervention Program-Kentucky

Grants and Contracts Details

Description

Abstract Health-related quality of life, and the provision of evidence-based psychosocial services across all phases of care, have become increasingly important in the treatment of the entire family unit impacted by pediatric cancer. The Standards for Psychosocial Care of Children with Cancer and Their Families (the Standards), specifically prioritize psychosocial support for parents and other primary caregivers (PCCC) as an essential component of care.1 PCCC have many strengths but are also at increased risk for adverse psychological symptoms, including acute distress, posttraumatic stress symptoms (PTSS), anxiety, depression, and impaired family functioning.2 The Surviving Cancer Competently Intervention Program (SCCIP) is an evidence- based psychosocial treatment model that can modify these symptoms and benefit the entire family. We propose a three-step approach to integrating SCCIP into pediatric cancer care in Kentucky. SCCIP is a family-systems and cognitive-behavioral psychological intervention proven to reduce posttraumatic stress and improve mental health outcomes and coping in pediatric cancer.3 It is a hallmark program of the Center for Pediatric Traumatic Stress (CPTS; www.healthcaretoolbox.org), a center in the National Child Traumatic Stress Network devoted to traumatic stress responses in pediatric healthcare. CPTS is anchored in Kentucky, Delaware, and Pennsylvania. Over three decades, new iterations of the SCCIP psychosocial treatment model (see Approach) have been tested including a day-long family intervention, a three-session individual family intervention, a digital adaptation (in English and Spanish), and a family camp modification. Each version has been tested across settings and over 150 providers nationwide have been trained in the SCCIP psychosocial treatment model.4,5 Given its strong multi-disciplined psychosocial team, recognition for Standards implementation, patient advisory panel, and existent programming for PCCC, Norton Children’s Hospital is uniquely positioned to utilize its existent resources to adapt, test, and implement an innovative iteration of SCCIP (SCCIP-KY) for high-risk groups in Kentucky. This study represents the KPCRTF vision to augment and elevate collaborative efforts for fostered innovation thru the partnership of state and national psychosocial leaders at Norton Children’s Hospital, UK Healthcare and the SCCIP Team at the CPTS.
StatusActive
Effective start/end date7/1/246/30/25

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