A comparison of quality of life between native and non-native cancer survivors: Native and Non-Native Cancer Survivors' QOL

Linda Burhansstipanov, Mark Dignan, Katherine L. Jones, Linda U. Krebs, Paula Marchionda, Judith Salmon Kaur

Research output: Contribution to journalArticlepeer-review

24 Scopus citations

Abstract

This paper compares quality of life (QOL) outcomes between Native American and non-Native cancer survivors. Native Patient Navigators helped Native cancer patients complete a 114-item QOL survey and access survivorship information available on the NACES website. The survey was modified from Ferrell et. al's QOL measure and assessed the four domains of cancer survivorship: physical, psychological, social, and spiritual [1]. Findings from Native survivors were compared to Ferrell's findings. This is the first time that QOL outcomes have been compared between Native and Non-Native cancer survivors. Natives scored lower for physical and social QOL, the same for psychological QOL, and higher for spiritual QOL in comparison to non-Natives. Overall QOL scores were the same. Although this is the largest sample of Native cancer survivors reported in peer-reviewed manuscripts, these Native survivorship data are based on a self-selected group and it is unknown if the findings are generalizable to others.

Original languageEnglish
Pages (from-to)S106-S113
JournalJournal of Cancer Education
Volume27
Issue numberSUPPL. 1
DOIs
StatePublished - Apr 2012

Bibliographical note

Funding Information:
This study was supported by National Cancer Institute [P.I. Burhansstipanov; NCI R25 CA 101938], Susan G. Komen for the Cure® [P.I. Burhansstipanov POP0202135 and POP0503920], and Mayo Clinic’s Spirit of Eagles Community Network Programs 1 and 2 [P.I. Kaur; NCI U01 CA 114609 and U54CA153605]. This study was made possible through the assistance of Native Patient Navigators: Loretta Denny, Becky Dreadfulwater, Lisa D. Harjo, Audrey Marshall, Denise Lindstrom, Rose Lee, Winona Johnson, Arlene Wahwasuck, Rosanne Wyman and Brenda Yazzie; National Indian Women’s Health Resource Center, and the Privacy Broker, Ms. Alice A. Bradley, MA.

Keywords

  • American indian
  • Cancer
  • Native american
  • Psychosocial
  • Quality of life
  • Survivors

ASJC Scopus subject areas

  • Oncology
  • Public Health, Environmental and Occupational Health

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