TY - JOUR
T1 - A compendium of community engagement responses to the COVID-19 pandemic
AU - Eder, Milton Mickey
AU - Millay, Tamara A.
AU - Cottler, Linda B.
AU - Ralston, Penny
AU - Millender, Eugenia
AU - Speights, Joedrecka S.Brown
AU - De Leon, Jessica
AU - Wiehe, Sarah
AU - Claxton, Gina
AU - Savaiano, Dennis
AU - Himmelfarb, Cheryl Dennison
AU - Ahmed, Syed
AU - Nelson, David
AU - Brown, Jen
AU - Kandula, Namratha
AU - Tandon, Darius
AU - Thomas, Ariel
AU - AuYoung, Mona
AU - Chen, Wei Ting
AU - Stewart, M. Kate
AU - Zender, Robynn
AU - Brown, Arleen F.
AU - Carson, Savanna L.
AU - Morris, D’Ann
AU - Vassar, Stefanie D.
AU - Von Jaeger, Rodney
AU - Taras, Howard
AU - Nguyen, Francisco Tung
AU - Palmer, Nynikka
AU - Fleisher, Paula
AU - Cabrera, Abby
AU - Wong, Erica
AU - Harrison, James
AU - Potter, Mike
AU - Grumbach, Kevin
AU - Millay, Tamara
AU - Striley, Catherine
AU - Mudd, Gia
AU - Eder, Milton
AU - Monsen, Karen
AU - Austin, Robin
AU - Jones, Clarence
AU - Sugarwala, Laura
AU - Cullen, John
AU - Orlando, Elissa
AU - Bennett, Nancy
AU - Kubicek, Katrina
AU - Kipke, Michelle
AU - Croisant, Sharon A.
AU - Singleton, Chantele
N1 - Publisher Copyright:
© The Author(s), 2021. Published by Cambridge University Press on behalf of The Association for Clinical and Translational Science 2021.
PY - 2021/1/1
Y1 - 2021/1/1
N2 - Introduction: Clinical and Translational Science Award Program (CTSA)-funded institutions were charged with developing clinical and translational science programs and transforming clinical research at their institutions. Community engagement (CE) was recognized as a key component and catalyst of that transformation. CE hub capacities for working with communities and translating knowledge into practice have been illustrated through their COVID-19 responses. Methods: CE hub leaders met and discussed their CTSA’s early responses regarding the COVID-19 pandemic. The 2-hour discussion was distilled into themes which were sent to the CE hub leaders with a request for written accounts describing actions taken to engage local partners, communities, and institutions. The written reports form the basis for this compendium. Results: Eighteen institutions submitted written reports describing activities in relation to six themes: (1) listen to the community and respond to concerns, (2) collect data to understand the impact of COVID-19 on distinct communities and groups, (3) communicate science and address misinformation, (4) collaborate with health departments, (5) engage hubs and underrepresented populations in COVID-19 research, and (6) support our own well-being and that of others. Conclusions: Bidirectional interactions comprise the foundation of CE, which requires trusted partnerships that sustain communication through a series of activities and goals. The nimble responses to the pandemic substantiate the need for CE programs to maintain the infrastructure necessary to achieve the primary CTSA goals of improving health within and across communities and localities as well as expanding research participation of community members.
AB - Introduction: Clinical and Translational Science Award Program (CTSA)-funded institutions were charged with developing clinical and translational science programs and transforming clinical research at their institutions. Community engagement (CE) was recognized as a key component and catalyst of that transformation. CE hub capacities for working with communities and translating knowledge into practice have been illustrated through their COVID-19 responses. Methods: CE hub leaders met and discussed their CTSA’s early responses regarding the COVID-19 pandemic. The 2-hour discussion was distilled into themes which were sent to the CE hub leaders with a request for written accounts describing actions taken to engage local partners, communities, and institutions. The written reports form the basis for this compendium. Results: Eighteen institutions submitted written reports describing activities in relation to six themes: (1) listen to the community and respond to concerns, (2) collect data to understand the impact of COVID-19 on distinct communities and groups, (3) communicate science and address misinformation, (4) collaborate with health departments, (5) engage hubs and underrepresented populations in COVID-19 research, and (6) support our own well-being and that of others. Conclusions: Bidirectional interactions comprise the foundation of CE, which requires trusted partnerships that sustain communication through a series of activities and goals. The nimble responses to the pandemic substantiate the need for CE programs to maintain the infrastructure necessary to achieve the primary CTSA goals of improving health within and across communities and localities as well as expanding research participation of community members.
KW - COVID-19
KW - CTSA
KW - Community engagement
KW - PACER
KW - Translational Science
KW - community-engaged research
KW - disparities
KW - trust
UR - http://www.scopus.com/inward/record.url?scp=85108543737&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85108543737&partnerID=8YFLogxK
U2 - 10.1017/cts.2021.800
DO - 10.1017/cts.2021.800
M3 - Article
AN - SCOPUS:85108543737
VL - 5
JO - Journal of Clinical and Translational Science
JF - Journal of Clinical and Translational Science
IS - 1
M1 - e133
ER -