A data recipient centered de-identification method to retain statistical attributes

Tamas S. Gal, Thomas C. Tucker, Aryya Gangopadhyay, Zhiyuan Chen

Research output: Contribution to journalArticlepeer-review

14 Scopus citations

Abstract

Privacy has always been a great concern of patients and medical service providers. As a result of the recent advances in information technology and the government's push for the use of Electronic Health Record (EHR) systems, a large amount of medical data is collected and stored electronically. This data needs to be made available for analysis but at the same time patient privacy has to be protected through de-identification. Although biomedical researchers often describe their research plans when they request anonymized data, most existing anonymization methods do not use this information when de-identifying the data. As a result, the anonymized data may not be useful for the planned research project. This paper proposes a data recipient centered approach to tailor the de-identification method based on input from the recipient of the data. We demonstrate our approach through an anonymization project for biomedical researchers with specific goals to improve the utility of the anonymized data for statistical models used for their research project. The selected algorithm improves a privacy protection method called Condensation by Aggarwal et al. Our methods were tested and validated on real cancer surveillance data provided by the Kentucky Cancer Registry.

Original languageEnglish
Pages (from-to)32-45
Number of pages14
JournalJournal of Biomedical Informatics
Volume50
DOIs
StatePublished - Aug 2014

Keywords

  • Privacy
  • Statistical analysis
  • Utility based privacy preserving data mining

ASJC Scopus subject areas

  • Computer Science Applications
  • Health Informatics

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