A patient-centered gout information value chain: a scoping review

Maranda J. Russell; Sujin Kim; Aleksander Lenert

doi:10.1016/j.pec.2021.06.007

A patient-centered gout information value chain: a scoping review

Maranda J. Russell, Sujin Kim, Aleksander Lenert

Research output: Contribution to journal › Review article › peer-review

3 Scopus citations

Abstract

Objective: To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis. Methods: Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13). Results: The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education. Conclusion: Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them. Practice implications: This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.

Original language	English
Pages (from-to)	30-43
Number of pages	14
Journal	Patient Education and Counseling
Volume	105
Issue number	1
DOIs	https://doi.org/10.1016/j.pec.2021.06.007
State	Published - Jan 2022

Bibliographical note

Funding Information:
The project described was partially supported by the NIH National Center for Advancing Translational Sciences through grant number UL1TR001998 . The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH.

Funding Information:
The project described was partially supported by the NIH National Center for Advancing Translational Sciences through grant number UL1TR001998. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH.

Publisher Copyright:
© 2021 Elsevier B.V.

ASJC Scopus subject areas

Medicine (all)

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10.1016/j.pec.2021.06.007

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title = "A patient-centered gout information value chain: a scoping review",

abstract = "Objective: To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis. Methods: Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13). Results: The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education. Conclusion: Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them. Practice implications: This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.",

author = "Russell, {Maranda J.} and Sujin Kim and Aleksander Lenert",

note = "Funding Information: The project described was partially supported by the NIH National Center for Advancing Translational Sciences through grant number UL1TR001998 . The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Funding Information: The project described was partially supported by the NIH National Center for Advancing Translational Sciences through grant number UL1TR001998. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Publisher Copyright: {\textcopyright} 2021 Elsevier B.V.",

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AU - Lenert, Aleksander

N1 - Funding Information: The project described was partially supported by the NIH National Center for Advancing Translational Sciences through grant number UL1TR001998 . The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Funding Information: The project described was partially supported by the NIH National Center for Advancing Translational Sciences through grant number UL1TR001998. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Publisher Copyright: © 2021 Elsevier B.V.

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N2 - Objective: To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis. Methods: Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13). Results: The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education. Conclusion: Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them. Practice implications: This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.

AB - Objective: To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis. Methods: Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13). Results: The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education. Conclusion: Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them. Practice implications: This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.

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A patient-centered gout information value chain: a scoping review

Abstract

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