A patient-centered gout information value chain: a scoping review

Maranda J. Russell; Sujin Kim; Aleksander Lenert

doi:10.1016/j.pec.2021.06.007

A patient-centered gout information value chain: a scoping review

Maranda J. Russell, Sujin Kim, Aleksander Lenert

Research output: Contribution to journal › Review article › peer-review

3 Scopus citations

Abstract

Objective: To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis. Methods: Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13). Results: The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education. Conclusion: Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them. Practice implications: This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.

Original language	English
Pages (from-to)	30-43
Number of pages	14
Journal	Patient Education and Counseling
Volume	105
Issue number	1
DOIs	https://doi.org/10.1016/j.pec.2021.06.007
State	Published - Jan 2022

Bibliographical note

Publisher Copyright:
© 2021 Elsevier B.V.

Funding

The project described was partially supported by the NIH National Center for Advancing Translational Sciences through grant number UL1TR001998 . The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. The project described was partially supported by the NIH National Center for Advancing Translational Sciences through grant number UL1TR001998. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH.

Funders	Funder number
National Institutes of Health (NIH)
National Center for Advancing Translational Sciences (NCATS)	UL1TR001998

ASJC Scopus subject areas

General Medicine

Access to Document

10.1016/j.pec.2021.06.007

Cite this

@article{9724f0c7a44a4c8092f67037d2e26971,

title = "A patient-centered gout information value chain: a scoping review",

abstract = "Objective: To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis. Methods: Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13). Results: The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education. Conclusion: Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them. Practice implications: This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.",

author = "Russell, \{Maranda J.\} and Sujin Kim and Aleksander Lenert",

note = "Publisher Copyright: {\textcopyright} 2021 Elsevier B.V.",

year = "2022",

month = jan,

doi = "10.1016/j.pec.2021.06.007",

language = "English",

volume = "105",

pages = "30--43",

number = "1",

}

TY - JOUR

T1 - A patient-centered gout information value chain

T2 - a scoping review

AU - Russell, Maranda J.

AU - Kim, Sujin

AU - Lenert, Aleksander

PY - 2022/1

Y1 - 2022/1

N2 - Objective: To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis. Methods: Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13). Results: The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education. Conclusion: Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them. Practice implications: This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.

AB - Objective: To examine and identify the scope of research addressing health information requirements for gout patients using value chain analysis. Methods: Five electronic databases (PubMed, CINAHL, ERIC, PsycINFO, Embase, and Scopus) and grey literature (WorldCat) were searched in accordance with a published protocol. Only English language articles were included, with no limitations for date of publication. The findings of the 33 studies included for final analysis were subsequently divided into 6 groups according to the stages of the care delivery value chain their research most closely pertained to: screening/preventing (n = 2), diagnosing (n = 1), preparing (n = 7), intervening (n = 11), recovering/rehabilitating (n = 5), and monitoring/managing (n = 13). Results: The 33 studies focused on one or more of the following information phenotypes: 1) pathophysiology; 2) medical treatment; and 3) nonpharmaceutical interventions. Long term treatment adherence was a popular topic amongst studies that focused on gout patient education. Conclusion: Based on the identified studies, gout patients are being told what to do, but are not being adequately educated regarding why recommended interventions are important or how to accomplish them. Practice implications: This review provides a foundation to develop and evaluate personalized education materials using value chain analysis.

UR - http://www.scopus.com/inward/record.url?scp=85107816505&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85107816505&partnerID=8YFLogxK

U2 - 10.1016/j.pec.2021.06.007

DO - 10.1016/j.pec.2021.06.007

M3 - Review article

C2 - 34120817

AN - SCOPUS:85107816505

SN - 0738-3991

VL - 105

SP - 30

EP - 43

JO - Patient Education and Counseling

JF - Patient Education and Counseling

IS - 1

ER -

A patient-centered gout information value chain: a scoping review

Abstract

Bibliographical note

Funding

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this