| Original language | English |
|---|---|
| Pages (from-to) | 1379-1382 |
| Number of pages | 4 |
| Journal | Morbidity and Mortality Weekly Report |
| Volume | 66 |
| Issue number | 50 |
| DOIs | |
| State | Published - Dec 22 2017 |
Bibliographical note
Funding Information:A patient with ALS has written, “ALS patients can have a zeal for life rare among patients with other diseases. Shorter life expectancy often spurs patient with ALS to make life experiences and relationships deeper. It is helpful to understand the concept that ‘everyone has a wheel chair,’ and that no one avoids life’s crises forever.” Organizations exist with the mission to defeat ALS through research, and provide support for the thousands of persons living with the disease in the United States. Such groups include the ALS Association, the Muscular Dystrophy Association, and the Les Turner ALS Foundation. However, more support for research is needed. Even with continued support from private donors, foundations, and institutions, rare diseases (those with <200,000 cases diagnosed nationwide)* like ALS still face barriers to research funding and treatment development.
ASJC Scopus subject areas
- Epidemiology
- Health(social science)
- Health, Toxicology and Mutagenesis
- Health Information Management