Creating a data commons: The INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT)

doi:10.1002/pbc.29924

Creating a data commons: The INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT)

Research output: Contribution to journal › Comment/debate

29 Scopus citations

Abstract

In this article, we will discuss the genesis, evolution, and progress of the INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT), which aims to foster international research and collaboration focused on pediatric soft tissue sarcoma. We will begin by highlighting the current state of clinical research for pediatric soft tissue sarcomas, including rhabdomyosarcoma and non-rhabdomyosarcoma soft tissue sarcoma. We will then explore challenges and research priorities, describe the development of INSTRuCT, and discuss how the consortium aims to address key research priorities.

Original language	English
Article number	e29924
Journal	Pediatric Blood and Cancer
Volume	69
Issue number	11
DOIs	https://doi.org/10.1002/pbc.29924
State	Published - Nov 2022

Bibliographical note

Publisher Copyright:
© 2022 The Authors. Pediatric Blood & Cancer published by Wiley Periodicals LLC.

Funding

INSTRuCT and the PCDC are supported in part by Cancer Research Foundation, Children's Research Foundation, Comer Development Board, KickCancer, King Baudouin Foundation, Rally Foundation for Childhood Cancer Research, Seattle Children's Foundation from Kat's Crew Guild through the Sarcoma Research Fund, St Baldrick's Foundation, and The Andrew McDonough B+ Foundation. This work is made possible through the efforts of COG, CWS, EpSSG, SIOP Malignant Mesenchymal Tumour Committee, and AIEOP Italian Soft Tissue Sarcoma Committee. INSTRuCT and the PCDC are supported in part by Cancer Research Foundation, Children's Research Foundation, Comer Development Board, KickCancer, King Baudouin Foundation, Rally Foundation for Childhood Cancer Research, Seattle Children's Foundation from Kat's Crew Guild through the Sarcoma Research Fund, St Baldrick's Foundation, and The Andrew McDonough B+ Foundation. This work is made possible through the efforts of COG, CWS, EpSSG, SIOP Malignant Mesenchymal Tumour Committee, and AIEOP Italian Soft Tissue Sarcoma Committee.

Funders
STSC AIEOP Italian Soft Tissue Sarcoma Committee
Comer Development Board
Cancer Research Foundation
Rally Foundation
St. Baldrick's Foundation
Andrew McDonough B+ Foundation
Koning Boudewijnstichting
Hunter Children's Research Foundation

Keywords

data aggregation
pediatrics
sarcoma

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Hematology
Oncology

Access to Document

10.1002/pbc.29924

Cite this

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title = "Creating a data commons: The INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT)",

abstract = "In this article, we will discuss the genesis, evolution, and progress of the INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT), which aims to foster international research and collaboration focused on pediatric soft tissue sarcoma. We will begin by highlighting the current state of clinical research for pediatric soft tissue sarcomas, including rhabdomyosarcoma and non-rhabdomyosarcoma soft tissue sarcoma. We will then explore challenges and research priorities, describe the development of INSTRuCT, and discuss how the consortium aims to address key research priorities.",

keywords = "data aggregation, pediatrics, sarcoma",

author = "Wyatt, \{Kirk D.\} and Suzi Birz and Hawkins, \{Douglas S.\} and Veronique Minard-Colin and Rodeberg, \{David A.\} and Monika Sparber-Sauer and Gianni Bisogno and Ewa Koscielniak and \{De Salvo\}, \{Gian Luca\} and Martin Ebinger and Merks, \{Johannes H.M.\} and Wolden, \{Suzanne L.\} and Wei Xue and Volchenboum, \{Samuel L.\}",

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year = "2022",

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doi = "10.1002/pbc.29924",

language = "English",

volume = "69",

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AU - Birz, Suzi

AU - Hawkins, Douglas S.

AU - Minard-Colin, Veronique

AU - Rodeberg, David A.

AU - Sparber-Sauer, Monika

AU - Bisogno, Gianni

AU - Koscielniak, Ewa

AU - De Salvo, Gian Luca

AU - Ebinger, Martin

AU - Merks, Johannes H.M.

AU - Wolden, Suzanne L.

AU - Xue, Wei

AU - Volchenboum, Samuel L.

PY - 2022/11

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N2 - In this article, we will discuss the genesis, evolution, and progress of the INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT), which aims to foster international research and collaboration focused on pediatric soft tissue sarcoma. We will begin by highlighting the current state of clinical research for pediatric soft tissue sarcomas, including rhabdomyosarcoma and non-rhabdomyosarcoma soft tissue sarcoma. We will then explore challenges and research priorities, describe the development of INSTRuCT, and discuss how the consortium aims to address key research priorities.

AB - In this article, we will discuss the genesis, evolution, and progress of the INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT), which aims to foster international research and collaboration focused on pediatric soft tissue sarcoma. We will begin by highlighting the current state of clinical research for pediatric soft tissue sarcomas, including rhabdomyosarcoma and non-rhabdomyosarcoma soft tissue sarcoma. We will then explore challenges and research priorities, describe the development of INSTRuCT, and discuss how the consortium aims to address key research priorities.

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U2 - 10.1002/pbc.29924

DO - 10.1002/pbc.29924

M3 - Comment/debate

AN - SCOPUS:85136019450

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JF - Pediatric Blood and Cancer

IS - 11

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ER -

Creating a data commons: The INternational Soft Tissue SaRcoma ConsorTium (INSTRuCT)

Abstract

Bibliographical note

Funding

Keywords

ASJC Scopus subject areas

Access to Document

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