Development and Evaluation of a Process to Link Cancer Patients in the SEER Registries to National Medicaid Enrollment Data

Joan L. Warren, Suzie Benner, Jennifer Stevens, Lindsey Enewold, Bin Huang, Lirong Zhao, Negussie Tilahun, Cathy J. Bradley

Research output: Contribution to journalArticlepeer-review

11 Scopus citations

Abstract

Cancer patients receiving Medicaid have worse prognosis. Patients in 14 Surveillance, Epidemiology, and End Results (SEER) cancer registries were linked to national Medicaid enrollment files, 2006-2013, to determine enrollment status during the year before and after diagnosis. A deterministic algorithm based on Social Security number, Medicare Health Insurance Claim number, sex, and date of birth was utilized. Results were compared with an independent linkage of Kentucky-based SEER and Medicaid data. A total 559 484 cancer cases were linked to national Medicaid enrollment files, representing 15-17% of persons with cancer yearly. About 60% of these cases were a complete match on all variables. There was 99% agreement on enrollment status compared with the Kentucky linked data. SEER data were successfully linked to national Medicaid enrollment data. NCI will make the linked data available to researchers, allowing for more detailed assessments of the impact Medicaid enrollment has on cancer diagnosis and outcomes.

Original languageEnglish
Pages (from-to)89-95
Number of pages7
JournalJournal of the National Cancer Institute - Monographs
Volume2020
Issue number55
DOIs
StatePublished - May 1 2020

Bibliographical note

Publisher Copyright:
© 2020 Published by Oxford University Press. This work is written by US Government employees and is in the public domain in the US.

ASJC Scopus subject areas

  • Oncology
  • Cancer Research

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