TY - JOUR
T1 - Ethics and informatics in the age of COVID-19
T2 - challenges and recommendations for public health organization and public policy
AU - Subbian, Vignesh
AU - Solomonides, Anthony
AU - Clarkson, Melissa
AU - Rahimzadeh, Vasiliki Nataly
AU - Petersen, Carolyn
AU - Schreiber, Richard
AU - Demuro, Paul R.
AU - Dua, Prerna
AU - Goodman, Kenneth W.
AU - Kaplan, Bonnie
AU - Koppel, Ross
AU - Lehmann, Christoph U.
AU - Pan, Eric
AU - Senathirajah, Yalini
N1 - Publisher Copyright:
© 2020 The Author(s). Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved.
PY - 2021/1/1
Y1 - 2021/1/1
N2 - The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.
AB - The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.
KW - COVID-19
KW - contact tracing
KW - ethics
KW - privacy
KW - public health surveillance
UR - http://www.scopus.com/inward/record.url?scp=85098469113&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85098469113&partnerID=8YFLogxK
U2 - 10.1093/jamia/ocaa188
DO - 10.1093/jamia/ocaa188
M3 - Article
C2 - 32722749
AN - SCOPUS:85098469113
VL - 28
SP - 184
EP - 189
IS - 1
ER -
