Purpose: To describe perceptions of financial navigation staff concerning patients’ cancer-related financial burden. Methods: This qualitative descriptive study used a semi-structured interview guide to examine perceptions of financial navigation staff concerning patients’ cancer-related financial burden. Staff who provided financial navigation support services to cancer patients were interviewed from different types of cancer programs across seven states representing rural, micropolitan, and urban settings. Interviews lasted approximately one hour, were audio recorded, and transcribed. Transcripts were double coded for thematic analysis. Results: Thirty-five staff from 29 cancer centers were interviewed. The first theme involved communication issues related to patient and financial navigation staff expectations, timing and the sensitive nature of financial discussions. The second theme involved the multi-faceted impact of financial burden on patients, including stress, difficulty adhering to treatments, and challenges meeting basic, non-medical needs. Conclusions and Implications for Cancer Survivors: Cancer-related financial burden has a profound impact on cancer survivors’ health and non-health outcomes. Discussions regarding cancer-related costs between cancer survivors and healthcare team members could help to normalize conversations and mitigate the multi-faceted determinants and effects of cancer-related financial burden. As treatment may span months and years and unexpected costs arise, having this discussion regularly and systematically is needed.
|Journal||Journal of Cancer Survivorship|
|State||Accepted/In press - 2022|
Bibliographical noteFunding Information:
This publication is supported by the Centers for Disease Control and Prevention of the US Department of Health and Human Services (HHS) as part of a financial assistance award with 100 percent funded by CDC/HHS (Cooperative Agreement Number U48 DP006377, U48 DP006389, U48 DP006400, U48 DP006401, U48 DP006398, 3 U48 DP005030-01S5, 3 U48 DP005006-01S3, 3 U48 DP005014-01S2). The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention. Additionally, Dr. Davis was partially funded by a National Cancer Institute Career Development Award (K07CA211971), and Ms. Petermann was funded by the Cancer Control Education Program T32 (T32CA057726-27).
This qualitative study was conducted through the Cancer Prevention and Control Research Network (CPCRN), a multicenter collaborative network funded by the US Centers for Disease Control and Prevention ( https://cpcrn.org/ ). The CPCRN includes academic, public health, and community partners working together to reduce the burden of cancer care, especially among underserved populations. This study was designed and conducted by a cross-CPCRN workgroup comprising seven participating CPCRN sites in 2018. We conducted and analyzed semi-structured interviews with staff from diverse cancer care programs located in Iowa, Kentucky, North Carolina, Ohio, Oregon, South Carolina, and Washington. This study was classified as expedited or exempt by the institutional review boards (IRBs) at all seven CPCRN sites.
© 2022, The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.
- Treatment costs
ASJC Scopus subject areas