Background: In rural Appalachia, numerous geographical, historical, and socioeconomic barriers undermine health. We describe a community/academic partnership that leveraged local assets to implement an on-the-ground enumeration approach to enrolling participants, ultimately achieving an 82.1% response rate in a cross-sectional study of adult respiratory disease. We sought to discuss challenges addressed while establishing an accurate sample frame and a broadly accepted data collection procedure. Methods: Innovative and established epidemiologic methods (household enumeration) were combined within a community-based participatory research (CBPR) framework. Community members partnered with researchers to identify an appropriate, novel sampling unit: hollows. Members of two community advisory boards (CABs) provided extensive guidance, and community health workers (CHWs) administered surveys and spirometry from randomly selected households. Results: Most hollows (28/40) had participation rates of more than 80%. The sample (N = 972) was representative of the study area. Conclusions: Investigators seeking to recruit hard-to-reach populations may consider on-the-ground enumeration guided by community partners.
|Number of pages||10|
|Journal||Progress in Community Health Partnerships: Research, Education, and Action|
|State||Published - Dec 1 2019|
Bibliographical noteFunding Information:
Supported by “Community-engaged Research & Action to Reduce Respiratory Disease in Appalachia,” by the National Institutes of Health, National Institutes of Environmental Health Science, R01ES024771 (PIs: Browning/Schoenberg).
© 2019 Johns Hopkins University Press.
- Appalachian Hollows
- Appalachian Region
- Community health partnerships
- Environmental Health
- Health disparities
- Respiratory Tract Diseases
- Rural Health
ASJC Scopus subject areas
- Health(social science)
- Sociology and Political Science