How do Hispanics/Latinos Perceive and Value the Return of Research Results?

Juan R. Canedo, Victoria Villalta-Gil, Carlos G. Grijalva, David Schlundt, Rebecca N. Jerome, Consuelo H. Wilkins

Research output: Contribution to journalArticlepeer-review

Abstract

Introduction: Interest in the return of research results has been increasing; however, little is known about how Hispanics/Latinos perceive and value receiving results. This study examined differences among Hispanics/Latinos by education and income in the experience and expectations about the return of research results, perceived value of specific types of information, and the least and most valuable specific information. Method: Retrospective observational design using a cross-sectional national survey sample of Hispanics/Latinos (n = 327). Results: Higher educational attainment was positively associated with the expectation to receive research results, likelihood to participate in research if given study findings, and likelihood to trust researchers if given results. Higher income was positively associated with the perceived value of getting results. Respondents with higher education specifically perceived greater value in information about how lifestyle and genetics affect their risk of disease, how genetics affect how they respond to medications, their ancestry, available clinical trials near them, and how to connect with other study participants. Respondents with higher income perceived greater value in information about how genetics affect their risk of disease and how they respond to medications. Conclusion: The findings offer important insights for planning research initiatives and for developing culturally targeted educational materials for Hispanics/Latinos.

Original languageEnglish
JournalHispanic Health Care International
DOIs
StateAccepted/In press - 2022

Bibliographical note

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the Agency for Healthcare Research and Quality (grant number T32HS026122).

Publisher Copyright:
© The Author(s) 2022.

Keywords

  • biomedical research
  • genetics
  • Hispanics/Latinos
  • precision medicine
  • value return of research results

ASJC Scopus subject areas

  • Nursing (all)

Fingerprint

Dive into the research topics of 'How do Hispanics/Latinos Perceive and Value the Return of Research Results?'. Together they form a unique fingerprint.

Cite this