Incentives and barriers to research participation and brain donation among African Americans

Tyler Schnieders, Deborah D. Danner, Caitlin McGuire, Flores Reynolds, Erin Abner

Research output: Contribution to journalArticlepeer-review

25 Scopus citations

Abstract

Successful African American recruitment for aging research requires sensitivity to factors that influence participation. In this work, a structured face-to-face educational interview was used to recruit African Americans for a longitudinal aging study and to collect information about attitudes related to research. The interview was designed to build trust and respect for research and to educate participants about the need for minority participants. Of the 91 African Americans aged 65 and older who completed interviews, 65 (71%) agreed to participate in the longitudinal study and approximately half agreed to brain donation. Those who enrolled and consented to brain donation were more likely to consider benefit to themselves or direct family unit as the main motivator for participation (P <.01). The study also found a significant increase in agreement to brain donation across enrollment periods (P =.0005).

Original languageEnglish
Pages (from-to)485-490
Number of pages6
JournalAmerican Journal of Alzheimer's Disease and other Dementias
Volume28
Issue number5
DOIs
StatePublished - Aug 2013

Keywords

  • African American
  • barriers
  • brain donation
  • incentives
  • participation
  • research

ASJC Scopus subject areas

  • General Neuroscience
  • Clinical Psychology
  • Geriatrics and Gerontology
  • Psychiatry and Mental health

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