Information and resources important to the quality of life of people living with multiple sclerosis

Malachy Bishop, Stuart Rumrill, Bradley McDaniels, Jian Li, Robert Fraser, Phillip D. Rumrill, Muna Bhattarai, Mirang Park

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Multiple sclerosis (MS) is a chronic, typically progressive immune-mediated disease characterized by inflammation and demyelination in the central nervous system (CNS), and is associated with a wide range of neurological, physical, and psychosocial effects. For people living with MS, access to relevant, timely, and accessible health information and resources may contribute to effective illness management, psychosocial health, and quality of life (QOL). In this study, we sought to increase understanding of the specific types of information most wanted by people with MS, as well as the sources and effects of this information. Specifically, we surveyed 748 adults with MS about (a) the sources from which they obtain information about MS, (b) the type of information that is most important in terms of improving their QOL, and (c) specific topics about which they would like to have more information, services, or resources. Content analysis of the qualitative results demonstrated the diversity of information sources accessed by people with MS and the importance of providing information through different formats and media. The participants prioritized information related to new MS medications and treatments, physical and mental health and wellness, and local opportunities for support. Implications for practicing rehabilitation counselors are discussed.

Original languageEnglish
Pages (from-to)92-104
Number of pages13
JournalAustralian Journal of Rehabilitation Counselling
Volume26
Issue number2
DOIs
StatePublished - Dec 2020

Bibliographical note

Funding Information:
Financial support. This research was funded through a grant from the National Multiple Sclerosis Society, New York, NY, USA. The authors wish to thank the National Multiple Sclerosis Society and study participants for their support and assistance with this research.

Publisher Copyright:
© The Author(s), 2020.

Keywords

  • Multiple sclerosis
  • health information
  • quality of life

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation

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