Insights From African American Older Adults on Brain Health Research Engagement: “Need to See the Need”

Shoshana H. Bardach, Markeda Yarbrough, Charlene Walker, Doris L. Alfred, Eseosa Ighodaro, Marc T. Kiviniemi, Gregory A. Jicha

Research output: Contribution to journalArticlepeer-review

4 Scopus citations

Abstract

African Americans (AAs) have an elevated risk of developing dementia, yet are underrepresented in clinical research. This project uses a community-engaged photovoice approach to add to existing understanding of barriers and facilitators to AA participation in Alzheimer’s disease research and identify strategies to enhance engagement. Three AA research advocates served as community facilitators to identify and guide groups of AA adults through an eight to nine session photovoice project. Group sessions involved discussions and sharing of images pertaining to various prompts in the area of brain health and research participation. Sessions were audiotaped and transcribed verbatim. Participants identified three categories of barriers to AA research participation: (a) Mistrust, (b) avoidance and fear of acknowledging problems, and (c) seeing the risks of research but not the need. Participants shared suggestions and approaches for ameliorating each of these barriers. This process revealed unique insights into barriers and opportunities for increasing AA engagement in aging and dementia research.

Original languageEnglish
Pages (from-to)201-208
Number of pages8
JournalJournal of Applied Gerontology
Volume40
Issue number2
DOIs
StatePublished - Feb 2021

Bibliographical note

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Support for this research was provided by the University of Kentucky Alzheimer’s Disease Center, funded by the National Institute on Aging/National Institute of Health (Grant No. P30 AG028383).

Funding Information:
The authors thank all the participants and facilitators who gave generously of their time to participate in this project. They also thank Dr. Shannon Bell who shared her expertise and experience with the photovoice process. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Support for this research was provided by the University of Kentucky Alzheimer?s Disease Center, funded by the National Institute on Aging/National Institute of Health (Grant No. P30 AG028383).

Publisher Copyright:
© The Author(s) 2020.

Keywords

  • Alzheimer’s disease
  • barriers research
  • photovoice
  • research engagement

ASJC Scopus subject areas

  • Gerontology
  • Geriatrics and Gerontology

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