TY - JOUR
T1 - Insights From African American Older Adults on Brain Health Research Engagement
T2 - “Need to See the Need”
AU - Bardach, Shoshana H.
AU - Yarbrough, Markeda
AU - Walker, Charlene
AU - Alfred, Doris L.
AU - Ighodaro, Eseosa
AU - Kiviniemi, Marc T.
AU - Jicha, Gregory A.
N1 - Publisher Copyright:
© The Author(s) 2020.
PY - 2021/2
Y1 - 2021/2
N2 - African Americans (AAs) have an elevated risk of developing dementia, yet are underrepresented in clinical research. This project uses a community-engaged photovoice approach to add to existing understanding of barriers and facilitators to AA participation in Alzheimer’s disease research and identify strategies to enhance engagement. Three AA research advocates served as community facilitators to identify and guide groups of AA adults through an eight to nine session photovoice project. Group sessions involved discussions and sharing of images pertaining to various prompts in the area of brain health and research participation. Sessions were audiotaped and transcribed verbatim. Participants identified three categories of barriers to AA research participation: (a) Mistrust, (b) avoidance and fear of acknowledging problems, and (c) seeing the risks of research but not the need. Participants shared suggestions and approaches for ameliorating each of these barriers. This process revealed unique insights into barriers and opportunities for increasing AA engagement in aging and dementia research.
AB - African Americans (AAs) have an elevated risk of developing dementia, yet are underrepresented in clinical research. This project uses a community-engaged photovoice approach to add to existing understanding of barriers and facilitators to AA participation in Alzheimer’s disease research and identify strategies to enhance engagement. Three AA research advocates served as community facilitators to identify and guide groups of AA adults through an eight to nine session photovoice project. Group sessions involved discussions and sharing of images pertaining to various prompts in the area of brain health and research participation. Sessions were audiotaped and transcribed verbatim. Participants identified three categories of barriers to AA research participation: (a) Mistrust, (b) avoidance and fear of acknowledging problems, and (c) seeing the risks of research but not the need. Participants shared suggestions and approaches for ameliorating each of these barriers. This process revealed unique insights into barriers and opportunities for increasing AA engagement in aging and dementia research.
KW - Alzheimer’s disease
KW - barriers research
KW - photovoice
KW - research engagement
UR - http://www.scopus.com/inward/record.url?scp=85079444194&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85079444194&partnerID=8YFLogxK
U2 - 10.1177/0733464820902002
DO - 10.1177/0733464820902002
M3 - Article
C2 - 32013658
AN - SCOPUS:85079444194
SN - 0733-4648
VL - 40
SP - 201
EP - 208
JO - Journal of Applied Gerontology
JF - Journal of Applied Gerontology
IS - 2
ER -