Insights From African American Older Adults on Brain Health Research Engagement: “Need to See the Need”

Shoshana H. Bardach; Markeda Yarbrough; Charlene Walker; Doris L. Alfred; Eseosa Ighodaro; Marc T. Kiviniemi; Gregory A. Jicha

doi:10.1177/0733464820902002

Insights From African American Older Adults on Brain Health Research Engagement: “Need to See the Need”

Shoshana H. Bardach, Markeda Yarbrough, Charlene Walker, Doris L. Alfred, Eseosa Ighodaro, Marc T. Kiviniemi, Gregory A. Jicha

Research output: Contribution to journal › Article › peer-review

11 Scopus citations

Abstract

African Americans (AAs) have an elevated risk of developing dementia, yet are underrepresented in clinical research. This project uses a community-engaged photovoice approach to add to existing understanding of barriers and facilitators to AA participation in Alzheimer’s disease research and identify strategies to enhance engagement. Three AA research advocates served as community facilitators to identify and guide groups of AA adults through an eight to nine session photovoice project. Group sessions involved discussions and sharing of images pertaining to various prompts in the area of brain health and research participation. Sessions were audiotaped and transcribed verbatim. Participants identified three categories of barriers to AA research participation: (a) Mistrust, (b) avoidance and fear of acknowledging problems, and (c) seeing the risks of research but not the need. Participants shared suggestions and approaches for ameliorating each of these barriers. This process revealed unique insights into barriers and opportunities for increasing AA engagement in aging and dementia research.

Original language	English
Pages (from-to)	201-208
Number of pages	8
Journal	Journal of Applied Gerontology
Volume	40
Issue number	2
DOIs	https://doi.org/10.1177/0733464820902002
State	Published - Feb 2021

Bibliographical note

Publisher Copyright:
© The Author(s) 2020.

Funding

The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Support for this research was provided by the University of Kentucky Alzheimer’s Disease Center, funded by the National Institute on Aging/National Institute of Health (Grant No. P30 AG028383). The authors thank all the participants and facilitators who gave generously of their time to participate in this project. They also thank Dr. Shannon Bell who shared her expertise and experience with the photovoice process. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Support for this research was provided by the University of Kentucky Alzheimer?s Disease Center, funded by the National Institute on Aging/National Institute of Health (Grant No. P30 AG028383).

Funders	Funder number
National Institutes of Health National Institute on Aging	P30 AG028383
University of Kentucky Alzheimer?s Disease Center
University of Kentucky Alzheimer’s Disease Research Center
National Institute on Aging	P30AG028383

Keywords

Alzheimer’s disease
barriers research
photovoice
research engagement

ASJC Scopus subject areas

Gerontology
Geriatrics and Gerontology

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10.1177/0733464820902002

Cite this

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abstract = "African Americans (AAs) have an elevated risk of developing dementia, yet are underrepresented in clinical research. This project uses a community-engaged photovoice approach to add to existing understanding of barriers and facilitators to AA participation in Alzheimer{\textquoteright}s disease research and identify strategies to enhance engagement. Three AA research advocates served as community facilitators to identify and guide groups of AA adults through an eight to nine session photovoice project. Group sessions involved discussions and sharing of images pertaining to various prompts in the area of brain health and research participation. Sessions were audiotaped and transcribed verbatim. Participants identified three categories of barriers to AA research participation: (a) Mistrust, (b) avoidance and fear of acknowledging problems, and (c) seeing the risks of research but not the need. Participants shared suggestions and approaches for ameliorating each of these barriers. This process revealed unique insights into barriers and opportunities for increasing AA engagement in aging and dementia research.",

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Insights From African American Older Adults on Brain Health Research Engagement: “Need to See the Need”

Abstract

Bibliographical note

Funding

Keywords

ASJC Scopus subject areas

Access to Document

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