Abstract
Background: Recent guidelines highlight the need for clinician-patient discussions regarding end-of-life (EOL) choices prior to implantable cardioverter defibrillator (ICD) implantation. Health literacy could affect the quality and quantity of such discussions. Objective: Our objective was to determine the association of health literacy with experiences, attitudes, and knowledge of the ICD at EOL. Methods: In this cross-sectional study, we used validated instruments to measure health literacy and patient experiences, attitudes, and knowledge of the ICD at EOL. Results: Of the 240 ICD recipients, 76% of participants reported never having discussed the implications of a future withdrawal of defibrillation therapy with their healthcare provider. Increased odds of choosing to maintain defibrillation therapy were associated with female gender and lower ICD knowledge. Conclusions: From patients’ perspectives, EOL discussions with providers were minimal. Most patients hold misperceptions about ICD function that could interfere with optimal EOL care, particularly for those with inadequate health literacy.
Original language | English |
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Pages (from-to) | 313-319 |
Number of pages | 7 |
Journal | Heart and Lung |
Volume | 48 |
Issue number | 4 |
DOIs | |
State | Published - Jul 1 2019 |
Bibliographical note
Publisher Copyright:© 2019 Elsevier Inc.
Keywords
- End of life
- End-of-Life Issues in Implantable Cardioverter Defibrillator Patients Questionnaire
- Hospital Anxiety and Depression Scale
- Implantable cardioverter defibrillator
- Newest Vital Sign
ASJC Scopus subject areas
- Pulmonary and Respiratory Medicine
- Critical Care and Intensive Care Medicine
- Cardiology and Cardiovascular Medicine