TY - JOUR
T1 - Modifiable barriers to enrollment in American ALS research studies
AU - Bedlack, Richard S.
AU - Wicks, Paul
AU - Heywood, James
AU - Kasarskis, Edward
PY - 2010/12
Y1 - 2010/12
N2 - Enrollment in ALS research studies is surprisingly low. Here we report on two online patient surveys that help identify some of the reasons. These include failure to invite patients to enroll, especially patients who have already participated in prior studies. Also included are patient concerns about the cost of participation, and confusion about several aspects of studies being offered. Along with prior work, these data suggest specific steps that can be taken to improve enrollment.
AB - Enrollment in ALS research studies is surprisingly low. Here we report on two online patient surveys that help identify some of the reasons. These include failure to invite patients to enroll, especially patients who have already participated in prior studies. Also included are patient concerns about the cost of participation, and confusion about several aspects of studies being offered. Along with prior work, these data suggest specific steps that can be taken to improve enrollment.
KW - Clinical trials
KW - Epidemiology
KW - Ethics
UR - http://www.scopus.com/inward/record.url?scp=77956393071&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=77956393071&partnerID=8YFLogxK
U2 - 10.3109/17482968.2010.484494
DO - 10.3109/17482968.2010.484494
M3 - Article
C2 - 20446890
AN - SCOPUS:77956393071
SN - 1748-2968
VL - 11
SP - 502
EP - 507
JO - Amyotrophic Lateral Sclerosis
JF - Amyotrophic Lateral Sclerosis
IS - 6
ER -