Modifiable barriers to enrollment in American ALS research studies

Richard S. Bedlack, Paul Wicks, James Heywood, Edward Kasarskis

Research output: Contribution to journalArticlepeer-review

16 Scopus citations


Enrollment in ALS research studies is surprisingly low. Here we report on two online patient surveys that help identify some of the reasons. These include failure to invite patients to enroll, especially patients who have already participated in prior studies. Also included are patient concerns about the cost of participation, and confusion about several aspects of studies being offered. Along with prior work, these data suggest specific steps that can be taken to improve enrollment.

Original languageEnglish
Pages (from-to)502-507
Number of pages6
JournalAmyotrophic Lateral Sclerosis
Issue number6
StatePublished - Dec 2010


  • Clinical trials
  • Epidemiology
  • Ethics

ASJC Scopus subject areas

  • Neurology
  • Clinical Neurology


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