Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R

Edward J. Kasarskis; Linda Dempsey-Hall; Megan Malley Thompson; Lan Chi Luu; Marta Mendiondo; Richard Kryscio

doi:10.1080/14660820510027107

Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R

Edward J. Kasarskis, Linda Dempsey-Hall, Megan Malley Thompson, Lan Chi Luu, Marta Mendiondo, Richard Kryscio

Research output: Contribution to journal › Article › peer-review

60 Scopus citations

Abstract

We tested the hypothesis that the ALSFRS-R can be accurately administered exclusively to the spouse/caregiver over the telephone (phone) in 31 patients with clinically possible, probable, or definite ALS (El Escorial criteria) by comparing the phone response to the consensus assessment during a clinic visit using a standardized script. We also compared the responses of the spouse/caregiver, during a private assessment, to the consensus assessment. Both the phone and private assessments were highly correlated with the consensus assessment, even considering that the evaluations were performed by multiple phone assessors and, in three instances, multiple home assessors. These results suggest the possibility of using this approach to conduct research in ALS.

Original language	English
Pages (from-to)	50-54
Number of pages	5
Journal	Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
Volume	6
Issue number	1
DOIs	https://doi.org/10.1080/14660820510027107
State	Published - Mar 2005

Bibliographical note

Funding Information:
This work was supported in part by VA Cooperative Studies Program 500a, grants from the ALS Association, NIH grant M0 1RR02602 in support of the General Clinical Research Center at the University of Kentucky, and the Cynthia Shaw Crispen Endowment. We thank Dr. Kelli Dominick for her careful review of this manuscript and suggestions.

Keywords

ALSFRS-R
Phone administration
Spouse rating

ASJC Scopus subject areas

Clinical Neurology

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10.1080/14660820510027107

Cite this

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title = "Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R",

abstract = "We tested the hypothesis that the ALSFRS-R can be accurately administered exclusively to the spouse/caregiver over the telephone (phone) in 31 patients with clinically possible, probable, or definite ALS (El Escorial criteria) by comparing the phone response to the consensus assessment during a clinic visit using a standardized script. We also compared the responses of the spouse/caregiver, during a private assessment, to the consensus assessment. Both the phone and private assessments were highly correlated with the consensus assessment, even considering that the evaluations were performed by multiple phone assessors and, in three instances, multiple home assessors. These results suggest the possibility of using this approach to conduct research in ALS.",

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note = "Funding Information: This work was supported in part by VA Cooperative Studies Program 500a, grants from the ALS Association, NIH grant M0 1RR02602 in support of the General Clinical Research Center at the University of Kentucky, and the Cynthia Shaw Crispen Endowment. We thank Dr. Kelli Dominick for her careful review of this manuscript and suggestions.",

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AU - Mendiondo, Marta

AU - Kryscio, Richard

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Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R

Abstract

Bibliographical note

Keywords

ASJC Scopus subject areas

Access to Document

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