Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R

Edward J. Kasarskis, Linda Dempsey-Hall, Megan Malley Thompson, Lan Chi Luu, Marta Mendiondo, Richard Kryscio

Research output: Contribution to journalArticlepeer-review

58 Scopus citations


We tested the hypothesis that the ALSFRS-R can be accurately administered exclusively to the spouse/caregiver over the telephone (phone) in 31 patients with clinically possible, probable, or definite ALS (El Escorial criteria) by comparing the phone response to the consensus assessment during a clinic visit using a standardized script. We also compared the responses of the spouse/caregiver, during a private assessment, to the consensus assessment. Both the phone and private assessments were highly correlated with the consensus assessment, even considering that the evaluations were performed by multiple phone assessors and, in three instances, multiple home assessors. These results suggest the possibility of using this approach to conduct research in ALS.

Original languageEnglish
Pages (from-to)50-54
Number of pages5
JournalAmyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
Issue number1
StatePublished - Mar 2005

Bibliographical note

Funding Information:
This work was supported in part by VA Cooperative Studies Program 500a, grants from the ALS Association, NIH grant M0 1RR02602 in support of the General Clinical Research Center at the University of Kentucky, and the Cynthia Shaw Crispen Endowment. We thank Dr. Kelli Dominick for her careful review of this manuscript and suggestions.


  • Phone administration
  • Spouse rating

ASJC Scopus subject areas

  • Clinical Neurology


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