Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions

Shoshana H. Bardach, Allison Gibson, Kelly Parsons, April Stauffer, Gregory A. Jicha

Research output: Contribution to journalArticlepeer-review

8 Scopus citations

Abstract

Objectives: The prevalence of Alzheimer's disease and associated disorders is increasing. Rural residents in the United States have less access to memory care specialists and educational and community resources than in other areas of the country. Over a decade ago, we initiated an interdisciplinary rural caregiving telemedicine program to reach Kentucky residents in areas of the state where resources for supporting individuals with dementia are limited. Telemedicine programs involve a short informational presentation followed by a question and answer session; programs are offered 4 times a year. The purpose of this study was to explore questions asked over 1 year of the rural caregiving telemedicine program—encompassing 5 programs—to identify the scope of dementia-related knowledge gaps among attendees. Methods: Questions from the 5 programs were recorded and content analyzed to identify areas of frequent informational requests. Results: There were a total of 69 questions over the 5 sessions. For each program, questions ended due to time constraints rather than exhausting all inquiries. The most common topical areas of questions related to risk factors, behavioral management, diagnosis, and medications. Discussion and Implications: This study highlights that rural caregivers in Kentucky have diverse dementia educational needs. Rural communities may benefit from additional, targeted resources addressing these common areas of unmet informational needs.

Original languageEnglish
Pages (from-to)406-411
Number of pages6
JournalJournal of Rural Health
Volume37
Issue number2
DOIs
StatePublished - Mar 1 2021

Bibliographical note

Publisher Copyright:
© 2020 National Rural Health Association

Funding

<Comment: JRH style is to show funding and acknowledgments on page 1. In the PDF, these paragraphs should be moved to page 1, left column.> The project described was supported by the National Institute on Aging P30 AG028383. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH. Thank you to all the caregivers who participate in our programs to better meet the needs of their loved ones. Thank you also to the site facilitators and other professionals and organizations, including the Alzheimer's Association, who help make these programs possible. The project described was supported by the National Institute on Aging P30 AG028383. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH.

FundersFunder number
National Institutes of Health (NIH)
National Institute on AgingP30AG028383
National Institute on Aging
Alzheimer's Association

    Keywords

    • content analysis
    • dementia
    • education
    • rural
    • telemedicine

    ASJC Scopus subject areas

    • Public Health, Environmental and Occupational Health

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