Secondary dementia caregiving and its consequences

Joseph E. Gaugler, Marta Mendiondo, Charles D. Smith, Frederick A. Schmitt

Research output: Contribution to journalArticlepeer-review

30 Scopus citations


The purpose of this study was to ascertain variations between primary and "secondary" caregivers (those who play a more supplemental role in the care of a relative). Survey data were collected from a sample of dementia caregivers recruited from the University of Kentucky Alzheimer's Disease Research Center (N = 1,016). Bivariate analyses found that primary and secondary caregivers varied on a number of background characteristics, and regression models indicated that primary caregivers provided a wider range of assistance with instrumental activities of daily living (IADLs), but not help with activities of daily living (ADLs). Primary and secondary caregivers did not differ significantly in reports of subjective health. The findings suggest that future research and interventions should be inclusive of primary and secondary caregivers.

Original languageEnglish
Pages (from-to)300-308
Number of pages9
JournalAmerican Journal of Alzheimer's Disease and other Dementias
Issue number5
StatePublished - 2003


  • ADL/IADL assistance
  • Alzheimer's
  • Caregiver health and well-being
  • Dementia
  • Primary caregiver
  • Secondary caregiver

ASJC Scopus subject areas

  • General Neuroscience
  • Clinical Psychology
  • Geriatrics and Gerontology
  • Psychiatry and Mental health


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