Tailored Messages About Research Participation: Using an Interactive Information Aid to Improve Study Recruitment

Susan E. Morgan, Wei Peng, Aurora Occa, Bingjing Mao, Soroya McFarlane, Gilles Grinfeder, Barbara Millet, Margaret M. Byrne

Research output: Contribution to journalArticlepeer-review

2 Scopus citations

Abstract

After a diagnosis of cancer (or other serious disease), patients may be asked to consider joining a clinical trial. Because most people are unfamiliar with the scientific concepts that are necessary to the provision of meaningful informed consent, patient education is necessary. Increasing knowledge alone is not sufficient; understanding how clinical trial participation aligns with personal circumstances and knowledge is central to the decision-making process. In this study, 302 cancer patients and survivors evaluated an interactive information aid (IA) designed to inform their decision to join a research study or clinical trial by providing tailored information to patients’ responses to questions pertaining to seven key barriers or facilitators of clinical trial participation. The development of the IA was done with input from the authors’ Clinical Translational Science Institute; linked components of the IA were vetted by members and leaders of the institution’s NCI-designated comprehensive cancer center. Results of the study indicated that the information aid was successful in significantly reducing fears and increasing knowledge, attitudes, perceived behavioral control, and behavioral intentions about research participation relative to a control condition. Thus, an interactive information aid that provides information that is responsive to patients’ values, knowledge, and personal circumstances can help patients to be better prepared to consider a decision about research participation.

Original languageEnglish
Pages (from-to)16-22
Number of pages7
JournalJournal of Cancer Education
Volume37
Issue number1
DOIs
StatePublished - Feb 2022

Bibliographical note

Funding Information:
This research was supported by Grant Number UL1TR000460, Miami Clinical and Translational Science Institute, from the National Center for Advancing Translational Sciences and the National Institute on Minority Health and Health Disparities. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the NIH.

Publisher Copyright:
© 2020, American Association for Cancer Education.

Keywords

  • Cancer communication
  • Clinical trials
  • Information aids

ASJC Scopus subject areas

  • Oncology
  • Public Health, Environmental and Occupational Health

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