The Cellie Coping Kit for children with Eosinophilic Esophagitis: Feasibility, acceptability, and preliminary outcomes

Alain J. Benitez, Ashley McGar, Kristen Kohser, Troy Gibbons, Amanda Muir, Maria Mascarenhas, Carmen Rossi, Francesca Dogias, Anneliese Golden, Nancy Kassam-Adams, Meghan L. Marsac

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Children with eosinophilic esophagitis (EoE) are faced with ongoing treatments that can impact their wellbeing. There are no evidence-based resources that families can implement independently to cope with EoE-related stressors. This study aimed to examine acceptability, feasibility, and preliminary outcomes of the newly developed Cellie Coping Kit for Children with EoE intervention. Forty child-caregiver dyads completed a baseline assessment (T1) and initiated the intervention; 30 (75%) child participants and 33 (82.5%) caregivers were retained to follow-up (T2). Of those who completed the T2 assessment, most reported that the intervention was easy to use (>90%) and would recommend the intervention to others (>90%). The intervention was feasible: >70% used the kit, and most indicated they would use it again (>75%). More than half of families reported learning new information and/or coping strategies. No statistically significant changes were identified in comparing T1 and T2 coping and health-related quality of life. These findings suggest that the Cellie Coping Kit for Children with EoE is a promising intervention in that it was well accepted, feasible, and helped many families learn novel strategies on how to manage EoE challenges. Future research should examine how to strengthen the intervention to achieve longer-term targeted outcomes.

Original languageEnglish
Pages (from-to)374-385
Number of pages12
JournalJournal of Child Health Care
Volume27
Issue number3
DOIs
StatePublished - Sep 2023

Bibliographical note

Publisher Copyright:
© The Author(s) 2022.

Keywords

  • Coping skills
  • Eosinophilic Esophagitis
  • pediatrics
  • quality of life

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Pediatrics

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