TY - JOUR
T1 - The centrality of disclosure decisions to the illness experience for youth with chronic conditions
T2 - A qualitative study
AU - Woodgate, Roberta Lynn
AU - Tennent, Pauline
AU - Barriage, Sarah
AU - Legras, Nicole
N1 - Publisher Copyright:
© The Author(s) 2020.
PY - 2022/3
Y1 - 2022/3
N2 - The aim of this paper is to illuminate findings of disclosure experiences for youth living with chronic illness using a non-categorical approach. The findings were derived from a larger qualitative study framed by social constructivist grounded theory that sought to understand youth’s involvement in healthcare decision-making in the context of chronic illness. Fifty-four youth participated in the study, ranging from 9 to 24 years. Three main themes representing the youth’s perspectives and experiences of disclosing chronic illness were identified: (1) disclosure is central to the illness experience; (2) spectrum of disclosure; and (3) navigating others’ reactions to disclosure. The findings reinforce that more emphasis on decisions related to disclosing illness in research and clinical care for youth with chronic conditions is warranted.
AB - The aim of this paper is to illuminate findings of disclosure experiences for youth living with chronic illness using a non-categorical approach. The findings were derived from a larger qualitative study framed by social constructivist grounded theory that sought to understand youth’s involvement in healthcare decision-making in the context of chronic illness. Fifty-four youth participated in the study, ranging from 9 to 24 years. Three main themes representing the youth’s perspectives and experiences of disclosing chronic illness were identified: (1) disclosure is central to the illness experience; (2) spectrum of disclosure; and (3) navigating others’ reactions to disclosure. The findings reinforce that more emphasis on decisions related to disclosing illness in research and clinical care for youth with chronic conditions is warranted.
KW - Canada
KW - chronic illness
KW - disclosure
KW - grounded theory
KW - non-categorical approach
KW - youth
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U2 - 10.1177/1359105320962242
DO - 10.1177/1359105320962242
M3 - Article
C2 - 32985894
AN - SCOPUS:85091683528
SN - 1359-1053
VL - 27
SP - 521
EP - 533
JO - Journal of Health Psychology
JF - Journal of Health Psychology
IS - 3
ER -