The heart of the matter: Patient autonomy as a model for the wellbeing of technology users

Emanuelle Burton; Judy Goldsmith; Kristel Clayville; Nicholas Mattei

doi:10.1145/3306618.3314254

The heart of the matter: Patient autonomy as a model for the wellbeing of technology users

Emanuelle Burton, Judy Goldsmith, Kristel Clayville, Nicholas Mattei

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

4 Scopus citations

Abstract

We draw on concepts in medical ethics to consider how computer science, and AI in particular, can develop critical tools for thinking concretely about technology's impact on the wellbeing of the people who use it. We focus on patient autonomy-the ability to set the terms of one's encounter with medicine-and on the mediating concepts of informed consent and decisional capacity, which enable doctors to honor patients' autonomy in messy and non-ideal circumstances. This comparative study is organized around a fictional case study of a heart patient with cardiac implants. Using this case study, we identify points of overlap and of difference between medical ethics and technology ethics, and leverage a discussion of that intertwined scenario to offer initial practical suggestions about how we can adapt the concepts of decisional capacity and informed consent to the discussion of technology design.

Original language	English
Title of host publication	AIES 2019 - Proceedings of the 2019 AAAI/ACM Conference on AI, Ethics, and Society
Pages	13-19
Number of pages	7
ISBN (Electronic)	9781450363242
DOIs	https://doi.org/10.1145/3306618.3314254
State	Published - Jan 27 2019
Event	2nd AAAI/ACM Conference on AI, Ethics, and Society, AIES 2019 - Honolulu, United States Duration: Jan 27 2019 → Jan 28 2019

Publication series

Name	AIES 2019 - Proceedings of the 2019 AAAI/ACM Conference on AI, Ethics, and Society

Conference

Conference	2nd AAAI/ACM Conference on AI, Ethics, and Society, AIES 2019
Country/Territory	United States
City	Honolulu
Period	1/27/19 → 1/28/19

Bibliographical note

Publisher Copyright:
© 2019 Copyright held by the owner/author(s). Publication rights licensed to ACM.

Funding

This work was partially supported by NSF grant 1646887.

Funders	Funder number
National Science Foundation (NSF)	1646887

Keywords

AI and Society
Informed Consent
Patient Autonomy
User Centric Design

ASJC Scopus subject areas

Artificial Intelligence

Access to Document

10.1145/3306618.3314254

Cite this

Burton, E., Goldsmith, J., Clayville, K., & Mattei, N. (2019). The heart of the matter: Patient autonomy as a model for the wellbeing of technology users. In AIES 2019 - Proceedings of the 2019 AAAI/ACM Conference on AI, Ethics, and Society (pp. 13-19). (AIES 2019 - Proceedings of the 2019 AAAI/ACM Conference on AI, Ethics, and Society). https://doi.org/10.1145/3306618.3314254

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Burton, E, Goldsmith, J, Clayville, K & Mattei, N 2019, The heart of the matter: Patient autonomy as a model for the wellbeing of technology users. in AIES 2019 - Proceedings of the 2019 AAAI/ACM Conference on AI, Ethics, and Society. AIES 2019 - Proceedings of the 2019 AAAI/ACM Conference on AI, Ethics, and Society, pp. 13-19, 2nd AAAI/ACM Conference on AI, Ethics, and Society, AIES 2019, Honolulu, United States, 1/27/19. https://doi.org/10.1145/3306618.3314254

The heart of the matter: Patient autonomy as a model for the wellbeing of technology users. / Burton, Emanuelle; Goldsmith, Judy; Clayville, Kristel et al.
AIES 2019 - Proceedings of the 2019 AAAI/ACM Conference on AI, Ethics, and Society. 2019. p. 13-19 (AIES 2019 - Proceedings of the 2019 AAAI/ACM Conference on AI, Ethics, and Society).

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review

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The heart of the matter: Patient autonomy as a model for the wellbeing of technology users

Abstract

Publication series

Conference

Bibliographical note

Funding

Keywords

ASJC Scopus subject areas

Access to Document

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Cite this