The Impact of a Web-Based Educational and Support Intervention on Parents' Perception of Their Children's Cancer Quality of Life: An Exploratory Study

Anna Olafia Sigurdardottir, Erla Kolbrun Svavarsdottir, Mary Kay Rayens, Yevgeniya Gokun

Research output: Contribution to journalArticlepeer-review

11 Scopus citations

Abstract

The purpose of this exploratory study was to (1) describe the development of an evidence-based web educational and support intervention for families of children with cancer and (2) assess the favorability of the website, and whether there was any impact on the cancer communication aspect of the quality of life instrument. In the study, 38 persons participated-15 mothers, 12 fathers, and 11 children. The favorability score of the website was found to be very high. The mothers rated the website most favorable, followed closely by the fathers. Furthermore, even though it was not significant, an increase was found in the mothers' evaluation of cancer communication based on the Pediatric Quality of Life Questionnaire (PedsQL) after the intervention as compared with before. The findings suggest that the use of an evidence-based website is feasible, appears to enhance cancer knowledge and might, in that way, contribute to better management of the cancer situation for the families.

Original languageEnglish
Pages (from-to)154-165
Number of pages12
JournalJournal of Pediatric Oncology Nursing
Volume31
Issue number3
DOIs
StatePublished - May 2014

Bibliographical note

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by grants from the Research Fund of the National University Hospital in Iceland, from the Science Fund of the Icelandic Nurse’s Association, and from the Fund of Kristin Bjornsdottir at the Icelandic Cancer Society.

Keywords

  • cancer education
  • families
  • pediatric oncology
  • social support
  • website

ASJC Scopus subject areas

  • Pediatrics
  • Oncology(nursing)

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