The national registry of veterans with amyotrophic lateral sclerosis: Department of Veterans Affairs Cooperative Studies Program (CSP) #500a

Edward J. Kasarskis, Kelli Dominic, Eugene Z. Oddone

Research output: Contribution to journalArticlepeer-review

19 Scopus citations

Abstract

In response to concern about the development of ALS among veterans of the U.S. armed forces, particularly Gulf War veterans, the Department of Veterans Affairs established a national registry of veterans with ALS. This Registry will identify living veterans with ALS, track the progression of their disease, and serve as a vehicle to facilitate study of epidemiological risk factors for ALS in a military context. The Registry will also function as a means of communication with the enrolled patients about basic and clinical ALS-specific research. Executive and scientific research committees guide the activity of the registry.

Original languageEnglish
Pages (from-to)129-132
Number of pages4
JournalAmyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
Volume5
Issue numberSUPPL. 1
DOIs
StatePublished - Sep 2004

Bibliographical note

Funding Information:
This study is funded by the Department of Veterans Affairs Cooperative Studies Program (CSP #500a). The authors gratefully acknowledge the participation of the following in the operation of the Registry: Barbara Norman, Jennifer Hoff-Lindquist, Cynthia Coffman, Steve Grambow, Priscilla Webster-Williams, and Linda Dempsey-Hall.

Keywords

  • ALS
  • Veterans Affairs

ASJC Scopus subject areas

  • Clinical Neurology

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