Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R

Edward J. Kasarskis; Linda Dempsey-Hall; Megan Malley Thompson; Lan Chi Luu; Marta Mendiondo; Richard Kryscio

doi:10.1080/14660820510027107

Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R

Edward J. Kasarskis
, Linda Dempsey-Hall
, Megan Malley Thompson
, Lan Chi Luu
, Marta Mendiondo
, Richard Kryscio

Producción científica: Article › revisión exhaustiva

63 Citas (Scopus)

Resumen

We tested the hypothesis that the ALSFRS-R can be accurately administered exclusively to the spouse/caregiver over the telephone (phone) in 31 patients with clinically possible, probable, or definite ALS (El Escorial criteria) by comparing the phone response to the consensus assessment during a clinic visit using a standardized script. We also compared the responses of the spouse/caregiver, during a private assessment, to the consensus assessment. Both the phone and private assessments were highly correlated with the consensus assessment, even considering that the evaluations were performed by multiple phone assessors and, in three instances, multiple home assessors. These results suggest the possibility of using this approach to conduct research in ALS.

Idioma original	English
Páginas (desde-hasta)	50-54
Número de páginas	5
Publicación	Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders
Volumen	6
N.º	1
DOI	https://doi.org/10.1080/14660820510027107
Estado	Published - mar 2005

Nota bibliográfica

Funding Information:
This work was supported in part by VA Cooperative Studies Program 500a, grants from the ALS Association, NIH grant M0 1RR02602 in support of the General Clinical Research Center at the University of Kentucky, and the Cynthia Shaw Crispen Endowment. We thank Dr. Kelli Dominick for her careful review of this manuscript and suggestions.

Financiación

This work was supported in part by VA Cooperative Studies Program 500a, grants from the ALS Association, NIH grant M0 1RR02602 in support of the General Clinical Research Center at the University of Kentucky, and the Cynthia Shaw Crispen Endowment. We thank Dr. Kelli Dominick for her careful review of this manuscript and suggestions.

Financiadores	Número del financiador
Cynthia Shaw Crispen Endowment
VA Cooperative Studies Program
National Institutes of Health (NIH)
National Center for Research Resources	M01RR002602
National Center for Research Resources
Hennepin Faculty Associates Amyotrophic Lateral Sclerosis Association Certified ALS Center
University of Kentucky

ASJC Scopus subject areas

Clinical Neurology

Acceder al documento

10.1080/14660820510027107

Otros archivos y enlaces

Citar esto

@article{86c3ff6920014348adf92891e45f9fef,

title = "Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R",

abstract = "We tested the hypothesis that the ALSFRS-R can be accurately administered exclusively to the spouse/caregiver over the telephone (phone) in 31 patients with clinically possible, probable, or definite ALS (El Escorial criteria) by comparing the phone response to the consensus assessment during a clinic visit using a standardized script. We also compared the responses of the spouse/caregiver, during a private assessment, to the consensus assessment. Both the phone and private assessments were highly correlated with the consensus assessment, even considering that the evaluations were performed by multiple phone assessors and, in three instances, multiple home assessors. These results suggest the possibility of using this approach to conduct research in ALS.",

keywords = "ALSFRS-R, Phone administration, Spouse rating",

author = "Kasarskis, \{Edward J.\} and Linda Dempsey-Hall and \{Malley Thompson\}, Megan and \{Chi Luu\}, Lan and Marta Mendiondo and Richard Kryscio",

note = "Funding Information: This work was supported in part by VA Cooperative Studies Program 500a, grants from the ALS Association, NIH grant M0 1RR02602 in support of the General Clinical Research Center at the University of Kentucky, and the Cynthia Shaw Crispen Endowment. We thank Dr. Kelli Dominick for her careful review of this manuscript and suggestions.",

year = "2005",

month = mar,

doi = "10.1080/14660820510027107",

language = "English",

volume = "6",

pages = "50--54",

number = "1",

}

TY - JOUR

T1 - Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R

AU - Kasarskis, Edward J.

AU - Dempsey-Hall, Linda

AU - Malley Thompson, Megan

AU - Chi Luu, Lan

AU - Mendiondo, Marta

AU - Kryscio, Richard

N1 - Funding Information: This work was supported in part by VA Cooperative Studies Program 500a, grants from the ALS Association, NIH grant M0 1RR02602 in support of the General Clinical Research Center at the University of Kentucky, and the Cynthia Shaw Crispen Endowment. We thank Dr. Kelli Dominick for her careful review of this manuscript and suggestions.

PY - 2005/3

Y1 - 2005/3

N2 - We tested the hypothesis that the ALSFRS-R can be accurately administered exclusively to the spouse/caregiver over the telephone (phone) in 31 patients with clinically possible, probable, or definite ALS (El Escorial criteria) by comparing the phone response to the consensus assessment during a clinic visit using a standardized script. We also compared the responses of the spouse/caregiver, during a private assessment, to the consensus assessment. Both the phone and private assessments were highly correlated with the consensus assessment, even considering that the evaluations were performed by multiple phone assessors and, in three instances, multiple home assessors. These results suggest the possibility of using this approach to conduct research in ALS.

AB - We tested the hypothesis that the ALSFRS-R can be accurately administered exclusively to the spouse/caregiver over the telephone (phone) in 31 patients with clinically possible, probable, or definite ALS (El Escorial criteria) by comparing the phone response to the consensus assessment during a clinic visit using a standardized script. We also compared the responses of the spouse/caregiver, during a private assessment, to the consensus assessment. Both the phone and private assessments were highly correlated with the consensus assessment, even considering that the evaluations were performed by multiple phone assessors and, in three instances, multiple home assessors. These results suggest the possibility of using this approach to conduct research in ALS.

KW - ALSFRS-R

KW - Phone administration

KW - Spouse rating

UR - https://www.scopus.com/pages/publications/18744387401

UR - https://www.scopus.com/pages/publications/18744387401#tab=citedBy

U2 - 10.1080/14660820510027107

DO - 10.1080/14660820510027107

M3 - Article

C2 - 16036426

AN - SCOPUS:18744387401

SN - 1466-0822

VL - 6

SP - 50

EP - 54

JO - Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders

JF - Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders

IS - 1

ER -

Rating the severity of ALS by caregivers over the telephone using the ALSFRS-R

Resumen

Nota bibliográfica

Financiación

ASJC Scopus subject areas

Acceder al documento

Otros archivos y enlaces

Huella

Citar esto