The Impact of a Web-Based Educational and Support Intervention on Parents' Perception of Their Children's Cancer Quality of Life: An Exploratory Study

Anna Olafia Sigurdardottir; Erla Kolbrun Svavarsdottir; Mary Kay Rayens; Yevgeniya Gokun

doi:10.1177/1043454213515334

The Impact of a Web-Based Educational and Support Intervention on Parents' Perception of Their Children's Cancer Quality of Life: An Exploratory Study

Anna Olafia Sigurdardottir
, Erla Kolbrun Svavarsdottir
, Mary Kay Rayens
, Yevgeniya Gokun

Producción científica: Article › revisión exhaustiva

15 Citas (Scopus)

Resumen

The purpose of this exploratory study was to (1) describe the development of an evidence-based web educational and support intervention for families of children with cancer and (2) assess the favorability of the website, and whether there was any impact on the cancer communication aspect of the quality of life instrument. In the study, 38 persons participated-15 mothers, 12 fathers, and 11 children. The favorability score of the website was found to be very high. The mothers rated the website most favorable, followed closely by the fathers. Furthermore, even though it was not significant, an increase was found in the mothers' evaluation of cancer communication based on the Pediatric Quality of Life Questionnaire (PedsQL) after the intervention as compared with before. The findings suggest that the use of an evidence-based website is feasible, appears to enhance cancer knowledge and might, in that way, contribute to better management of the cancer situation for the families.

Idioma original	English
Páginas (desde-hasta)	154-165
Número de páginas	12
Publicación	Journal of Pediatric Oncology Nursing
Volumen	31
N.º	3
DOI	https://doi.org/10.1177/1043454213515334
Estado	Published - may 2014

Nota bibliográfica

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by grants from the Research Fund of the National University Hospital in Iceland, from the Science Fund of the Icelandic Nurse’s Association, and from the Fund of Kristin Bjornsdottir at the Icelandic Cancer Society.

Financiación

The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by grants from the Research Fund of the National University Hospital in Iceland, from the Science Fund of the Icelandic Nurse’s Association, and from the Fund of Kristin Bjornsdottir at the Icelandic Cancer Society.

Financiadores
Icelandic Cancer Society
Icelandic Nurse’s Association
National University Hospital in Iceland

ODS de las Naciones Unidas

Este resultado contribuye a los siguientes Objetivos de Desarrollo Sostenible

Good health and well being

ASJC Scopus subject areas

Pediatrics
Oncology(nursing)

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10.1177/1043454213515334

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title = "The Impact of a Web-Based Educational and Support Intervention on Parents' Perception of Their Children's Cancer Quality of Life: An Exploratory Study",

abstract = "The purpose of this exploratory study was to (1) describe the development of an evidence-based web educational and support intervention for families of children with cancer and (2) assess the favorability of the website, and whether there was any impact on the cancer communication aspect of the quality of life instrument. In the study, 38 persons participated-15 mothers, 12 fathers, and 11 children. The favorability score of the website was found to be very high. The mothers rated the website most favorable, followed closely by the fathers. Furthermore, even though it was not significant, an increase was found in the mothers' evaluation of cancer communication based on the Pediatric Quality of Life Questionnaire (PedsQL) after the intervention as compared with before. The findings suggest that the use of an evidence-based website is feasible, appears to enhance cancer knowledge and might, in that way, contribute to better management of the cancer situation for the families.",

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The Impact of a Web-Based Educational and Support Intervention on Parents' Perception of Their Children's Cancer Quality of Life: An Exploratory Study. / Sigurdardottir, Anna Olafia; Svavarsdottir, Erla Kolbrun; Rayens, Mary Kay et al.
En: Journal of Pediatric Oncology Nursing, Vol. 31, N.º 3, 05.2014, p. 154-165.

Producción científica: Article › revisión exhaustiva

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AU - Rayens, Mary Kay

AU - Gokun, Yevgeniya

N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was funded by grants from the Research Fund of the National University Hospital in Iceland, from the Science Fund of the Icelandic Nurse’s Association, and from the Fund of Kristin Bjornsdottir at the Icelandic Cancer Society.

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The Impact of a Web-Based Educational and Support Intervention on Parents' Perception of Their Children's Cancer Quality of Life: An Exploratory Study

Resumen

Nota bibliográfica

Financiación

ODS de las Naciones Unidas

ASJC Scopus subject areas

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